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Occasional LTC Policy Paper Series © 1997 Duke LTC Resources

North Carolina's CAP/DA Program:
The Cost of Serving Frail, Low-Income Elderly
by Stuart Bratesman, Jr., MPP
Policy Analysis
Duke Long Term Care Resources

Overview
The N.C. CAP/DA program allocates more of its resources to those clients with greater levels of functional impairment.
This is the second of two papers that examine the Community Alternatives Program for Disabled Adults (CAP/DA), North Carolina's Medicaid home and community-based waiver program. This program is intended to provide alternatives to nursing home placement for low-income disabled adults. The first paper, which described the purpose of the program, the types of services provided and used administrative data from an existing sequential monthly random sample of CAP/DA cases to describe basic demographic characteristics and levels of functional impairment found among North Carolina's CAP/DA population, concluded the program was on target.

This paper uses the same dataset to describe the allocation of program services to CAP/DA's frail clients with different levels of functional impairment. One would expect that an efficiently managed program would allocate a greater share of its resources to those clients who are more seriously impaired and this is what is found. Using a now larger version of the same random sample of CAP/DA clients (n=509) used in the first study, we find that in general, CAP/DA's county-based case managers do budget more resources to those clients who are more impaired in activities of daily living (ADL's).

These data provide a baseline for use by the N.C. Division of Medical Assistance to evaluate its performance in the future.

Methodology
Cumulative monthly random samples constitute the study sample.
This study is based upon the same sequential random sample described in our previous paper on the demographic and impairment characteristics of the N.C. CAP/DA population. Medical Review of North Carolina (MRNC), under contract to North Carolina's Medicaid agency, the Division of Medical Assistance (DMA), takes a statewide monthly sample of 85 CAP/DA clients chosen at random among the cases that were active that month, and performs a quality assurance examination of their records. Duke LTC has contracted with MRNC for selected assessment data for each of the 85 enrollees sampled monthly from March 1996-through-February 1997. We have received and analyzed the data for the 595 cases for the first eight months. The data include information from the client's most recent initial or annual assessment (as of the sample date) on age, gender, ethnicity, living arrangements, level of informal support and ADL impairments.

Standard measurements of Activities of Daily Living are used.
The CAP/DA assessment form rates actual client performance in grooming, bathing, dressing, toileting, transferring, walking, wheelchair use and eating on a five- point scale. The scale characterizes ADL performance as:
  • independent
  • only verbal prompting needed
  • minor hands-on help needed
  • totally dependent
  • activity does not occur1
We analyzed the relationship between costs and functional impairment in a number of ways, borrowing in part from previous work done by Williams, Fries, et. al. on the relationship between cost and functional impairment in the nursing home setting.2 The average mean monthly cost per client was calculated for the different levels of performance for each ADL and graphed to reveal trends.

Analyses of the association of functioning and cost follow the lead of published literature, e.g. RUG-III.
Average monthly costs per client were also calculated for two different composite scales of ADL performance. The simpler of these two scales counted the number of impairments at the minor hands-on help needed level or higher in six ADL's including bathing, dressing, transferring, walking, toileting and eating.

The second scale is a modified version of Williams and Fries Resource Utilization Groups, Version III (RUG-III) ADL Index. The original RUG-III scale included the four ADL's of bed mobility (essentially being able to turn or change positions in bed), toileting, transferring and eating. They found these four ADL's explained a sizeable proportion in the variation in nursing hours consumed in nursing homes at the individual client-level. The first three ADL's were scored one point for independence or supervision needed, three points for limited assistance, four points for one person needed to assist at the extensive assistance or total dependence level, and five points for two persons needed for assistance. Eating was scored differently with one point for independence or supervision, two points for limited assistance and three points for extensive assistance or total dependence.

To translate the CAP/DA assessment data to a modified RUG-III ADL scale usable in our analysis, we had to drop bed mobility since it is not measured or reported on the CAP/DA assessment form. Furthermore, we had to collapse the upper end of the RUG-III ADL scoring range since the CAP/DA form does not record the number of persons required to provide assistance in any particular impairment. See Appendix A for details on the modification used.

Client Cost Data
Determining CAP/DA client cost at the individual level, which is a complex task, was measured by the Total Medicaid Monthly Cost budgeted on each client's CAP/DA Plan of Care.
This study considers costs solely from the payer's perspective. To examine CAP/DA costs, we used the individual total monthly Medicaid cost as budgeted on each client's most recent CAP/DA plan of care. For this initial study, we chose budgeted monthly costs instead of actual billed costs for two reasons:



  • because billing for actual services rendered can be delayed for up to 18 months, MRNC is able to report budgeted costs much sooner; and
  • furthermore, each client's budgeted monthly costs smooth out month-to-month variations in actual spending and prorate high-priced, one-time or short-term expenditures over the full program year
The association of budgeted and actual individual cost of services, we believe, is close enough to make them inter-changeable in a preliminary study.
CAP/DA case managers budget service on plans of care for each of their clients annually, or more often as situations warrant. Plans of care, based on client needs as determined in the assessment, itemize the average monthly cost of each client's Medicaid services and covered supplies. The costs of durable medical equipment, home mobility aids, and short- term intensive services provided for 60 days or less, are prorated over a twelve-month period, or over a shorter period if the client is expected to leave the program in less than twelve months.3

The use of budgeted monthly costs in place of actual billed costs obviously presents several potentially serious short- comings. We believe, however, the association is close enough for a useful analysis to proceed.

While we assume in our analysis that individual budgeted costs are a close proxy to actual individual costs, we have not yet been able to adequately test this assumption with evidence. Several possible source of error should be recognized. We cannot rule out that some case managers might think it prudent to over-state a client's service needs on a plan of care in order to provide a cushion for unforeseeable expenses. Differences in case manager training and experience could also introduce county-to-county variations in the relationship between budgeted and actual spending at the individual level.

One comparison we were able to make between budgeted and actual CAP/DA Medicaid costs at the aggregate level suggests they may not be far apart. N.C. DMA's most recent Annual Report for the CAP/DA program lists the average annual Medicaid cost per CAP/DA client at $16,125 for the twelve months ending September 1995, the most recently reported program year. The average CAP/DA case in that same year was active for 261 days yielding an average cost per active day of $61.78, or average cost per active month of $1,879. The average monthly budgeted cost in our sample covering the period of March-to-Sept. 1996 was $1,964, or 4½% above the actual costs of a year earlier. This finding is reassuring regarding the reliability of our cost measure, but only if we assume that actual average individual monthly costs remain fairly stable from year-to-year.

The average monthly budgeted cost for a CAP/DA client in 1996 was $1,964.
Indeed, between the 1993 and 1994 program years, average monthly individual costs fell ½-of-one percent, but in the 1992-to-93 interval there was a rise of 12%. Furthermore, the reader should always remember that consistency between averages can always mask considerable variation at the individual level.

CAP/DA clients vary by level of impairment. In our sample,
79% were ICF-level,
21% were SNF-level.
When examining the relationship between cost and measures of impairment, we also had to be aware that CAP/DA's budgeted costs are limited by a ceiling that changes annually, and that varies according to the client's care level as determined by the CAP assessment process. CAP/DA classifies two levels of care based on client eligibility for entry to an intermediate care facility (ICF-level) or to a skilled nursing facility (SNF-level). In our sample, 470 CAP/DA clients (79%) were classified at the ICF-level, 124 clients (21%) were classified at the SNF-level, and the level of care was missing for one case. This compares closely to the 78% of all CAP/DA clients who were classified at the ICF-level and 22% who were classified at the SNF-level in the 1994-95 program year.4

In July 1996, CAP/DA raised the monthly cost ceiling for ICF- level clients from $2,055 to $2,155, and raised the cost ceiling for SNF-level clients from $2,732 to $2,861.5 Since there is a three- month delay between the selection of cases for the CAP/DA quality review sample and the collection of cost data from the client plan of care, the July cost ceiling increase is reflected in the monthly samples selected from April 1996 onward. Thus, we excluded the March 1996 sample from our cost analysis.

The cost ceiling affects a much larger percentage of ICF-level clients than it does clients at SNF-level. Twenty-five percent of the ICF-level cases are clustered within $100 of the ICF- level monthly cost ceiling, while only 4% of the SNF-level cases are budgeted within $100 of the SNF-level ceiling.

Using an ADL Index Scale to Explore the Association of Cost and Impairment

The RUG-III ADL Index was modified to accommodate CAP/DA assessment data and used in a regression equation to predict cost in relation to level of impairment.
In exploring the relationship between level of impairment and average level of cost for services, ordinary least squares regression was first used to measure the relationship between Modified RUG-III ADL scores and budgeted monthly costs as the dependent variable. Since this single regression analysis explained much less of the variance in costs for the CAP/DA community-dwelling sample than Williams and Fries' original RUG-III ADL Index explained in the nursing home setting (R2=8% vs. R2=30%), a multiple regression analysis was performed with the additional independent variables of CAP/DA level of care, CAP/DA assessor's evaluation of informal support, and client's mental health function.

We hypothesized that the SNF-level of care, inadequate informal support, and a mental health impairment would all increase costs. The multiple regression equation, with an R2 value of 20%, explained two-and-one-half times the variance in CAP/DA costs that the single-regression equation did.

Findings
CAP/DA case managers do budget more resources and services to their more impaired clients.

Average Cost: $1,966 SNF-Level: $2,237 ICF-Level: $1,899
While many factors influence CAP/DA's individual client costs, in general, CAP/DA case managers apportion a larger share of program resources on those clients who are more seriously functionally impaired. The average monthly budgeted Medicaid cost for all CAP/DA clients in our sample was $1,966. As would be expected, SNF-level clients displayed a higher average cost at $2,237 per month, than did ICF-level clients at $1,899.

Individual monthly client costs span a broad range from a lowest of $246 per month to a maximum $2,855. The standard deviation is $351. Monthly costs for many ICF- equivalent clients cluster near the $2,155 cost ceiling for (see Figure 1). In our sample, case managers had budgeted 25% of the ICF-level clients within $100 of the monthly cost limit, and 62% of them within $200. The clustering of ICF-level clients near the ICF-level ceiling suggests that the CAP/DA budgets for many of these clients would have been higher had the ceiling not been in place.

In contrast, few of the SNF-level clients approach their $2,861 monthly ceiling. Only 5 of the 100 SNF-level CAP/DA clients in our sample were budgeted within $100 of the SNF-level ceiling and only 13% were budgeted within $200. The SNF- level average is actually very close to - only $86 above - the ICF-level limit.



What accounts for the difference in cost of service between CAP/DA clients? While the difference in classification between ICF and SNF equivalence plays an obvious role, part of the variation is also due to differences in the level of functional impairment as measured by the number of ADL's requiring hands-on assistance from another person to perform a task. For ICF-level clients, four-fifths of the CAP/DA population, the mean average cost of CAP/DA services rose progressively with the number of impairments in the six basic ADL's of bathing, dressing, walking, transferring, toileting and eating (see Table 1).

Table 1: The Average Monthly Budgeted Total Medicaid Cost for N.C. CAP/DA Clients was Higher for Those Clients with a Larger Number of ADL Impairments. Source: CAP/DA Quality Assurance Samples for April-Sept. 1996 (n=509)

  ICF-Level Clients SNF-Level Clients
Impairments
0-2 ADL's
3-4 ADL's
5-6 ADL's
0-2 ADL's
3-4 ADL's
5-6 ADL's
Average Cost
$1,741
$1,864
$1,958
$1,998
$2,061
$2,309
Cost Range
$536-$2,149
$246-$2,154
$885-$2,490
$818-$2,724
$511-$2,545
$1218-$2,855
# of Clients
66
105
238
11
15
74
The costs associated with "late-loss" ADL impairments such as eating and toileting are higher than those associated with other ADL's. Individual ADL's

Do the average costs associated with impairment in one kind of ADL differ from the average costs associated with impairments in other ADL's? Williams and Fries found that nursing home residents with impairments in "late-loss" ADL's such as bed mobility or eating were associated with higher average nursing costs than nursing home residents with impairments in dressing or grooming.6 We expected and found a similar pattern with the CAP/DA sample of community-dwelling frail adults (see Figure 2).

In the CAP/DA sample, the average costs associated with different levels of impairment in bathing and dressing are consistently lower than the costs associated with other ADL's. There are two factors most likely to account for these differences. One factor is the difference in cost of the types of care specific to each of the different ADL impairments. The other is a factor of the accumulation of multiple impairments.

Figure 2


As indicated in the previous paper in this series, CAP/DA serves a population with a high incidence of ADL impairments. Frail elderly persons with "late-loss" impairments in eating or toileting are known to be likely to display additional impairments among the other ADL's. Even those clients with little or no impairment in eating are still likely to be impaired in other ADL's; thus the average cost of serving a CAP/DA client with no impairment in eating still appears near the high-end of the chart. Clients who are independent or require only verbal prompting in "early-loss" ADL's such as dressing and bathing are likely to have fewer other impairments, and thus their costs appear lower on the chart.

Combining Number of ADL's with Degree of Impairment
The Williams and Fries RUG-III ADL Index was modified to accept CAP/DA assessment data.
One can refine an overall measure of impairment by using a scale that combines the number of ADL impairments with the degree of assistance required within each individual ADL. Williams and Fries created and demonstrated the reliability of the RUG-III ADL Index to measure impairment in the nursing home setting. They assigned point scores for each of four ADL's (toileting, transferring, eating and bed mobility) according to the level of assistance required, and added the scores together on a single scale from 4-to-18 points.

We had to modify the RUG-III ADL Index to be able to use it with the data collected by the CAP/DA client assessment form (see Appendix A). The CAP/DA assessment measures fewer gradations of required assistance than the RUG-III ADL Index, and does not measure bed mobility. The possible scores on our modified index range from 3-to-11 points.

ADL impairment, SNF equivalence, informal support, and mental health impairment were included in a multiple regression analysis to measure effects on cost.
We also sought to control for the effect of other variables in the CAP/DA assessment data that we hypothesized would have an effect on costs by including them in a multiple regression analysis with total monthly budgeted Medicaid cost as the predicted variable. The independent variables included the Modified RUG-III ADL score, SNF level of care, the CAP/DA assessor's evaluation of informal support and the assessor's evaluation of overall mental health functioning.

ADL impairment, SNF equivalence and informal support are statistically significant predictors of CAP/DA costs for individual clients.
The categorization of SNF vs. ICF level of care influences costs in two ways. The SNF designation identifies those clients with greater medical needs, and SNF level clients are allowed a higher cost ceiling. We noted earlier that the clustering of ICF-level clients near the ICF-level cost ceiling suggests that in some cases ICF client costs would be higher if the ceiling were not either not in place, or as high at the SNF ceiling. In the regression analysis, the level of care variable was scored 0 for ICF and 1 for SNF. We expected that the coefficient would be positive, indicating higher costs associated with SNF-equivalent clients.

Other studies have indicated that a client's informal support is an important influence in home and community-based care.7 We expected that clients with relatives or friends to supply unpaid care would cost less to serve than clients who had to rely to a greater proportion upon the support provided by the CAP/DA program. The CAP/DA assessment form measures five levels of informal support scored in the regression analysis as follows:8

1. intact and could expand if needed;
2. intact, but at limit
3. stressed, meeting with difficulty
4. inadequate
5. no informal support in place

We expected a higher score, representing less support, to be associated with higher costs.

We also expected that mental health problems would lead to higher costs of care. The CAP/DA assessment rates mental health status on the degree of supervision required, scoring 1 for adequate mental health status requiring no supervision, 2 for mental health impairments requiring supervision for specific tasks, and 3 for impairments requiring 24-hour supervision.9 Thus, a higher mental health impairment score should lead to higher costs.

The overall regression equation relating level of impairment to cost was very highly significant at the .001 level (see table 2).* The independent variables in the equation accounted for 20.6% of the variation in CAP/DA costs at the individual client-level. The modified RUG-III ADL Index was a very highly statistically significant predictor of individual client costs as were the ICF vs. SNF level of care. As expected, both of these variables had positive coefficients. Greater degrees of impairment in late-loss ADL's as measured by the modified RUG-III ADL Index, were associated with higher individual client costs. On average and holding the other variables constant, each one-point increase on the 3-to-11 point modified RUG-III ADL scale meant a $26.66 increase in monthly CAP/DA costs, plus or minus $10.91 at the 95% confidence level. Clients certified at the SNF-level of care average $297.82 more in total Medicaid costs per month than ICF-level clients, when the other variables are held constant.

* The model was tested for multicollinearity by regressing each of the independent variables on all the other independent variables and checking for R2 values approaching 1.0. None of the R2 values exceeded 0.126.

Table 2: Total Monthly Budgeted Medicaid Costs as a Function of ADL Impairment and Other Factors Using Ordinary Least Squares Regression Analysis
Source: N.C. CAP/DA Quality Assurance Samples, April-Sept. 1996 (n=509).

 
Variable
Coefficient
Standard Error
***
Intercept
$1,809.96
$58.31
***
Modified RUG-III ADL Score
$26.66
$5.55
***
Care Level (ICF=0, SNF=1)
$297.82
$35.51
**
Informal Support
-$63.59
$20.02
  Mental Impairment
$22.03
$15.96
Adjusted R2 value = 0.206

*** very highly statistically significant, p < .001

** highly statistically significant, p < .01

* statistically significant, p < .05
 

An unexpected result: CAP/DA clients with little or no informal support display lower average costs.
While the mental health impairment variable had a positive coefficient, associating greater impairment with higher cost, the mental health variable was not statistically significant. The positive coefficient, though reasonable and expected, could have been due instead to chance error in the sample.
The CAP/DA assessor's evaluation of informal support is the one variable that displayed an unexpected result. We had predicted that less informal support would lead to higher costs. The regression analysis suggests the opposite. One possible explanation is that CAP/DA is very selective in approving applicants. Table 3 indicates that clients with inadequate or no informal support account for only 3% of the persons accepted into the CAP/DA program. CAP/DA will approve services for an applicant, only if the assessors determine that person can cared for and maintained adequately and safely within the monthly cost limits. Therefore, it would seem reasonable that CAP/DA would accept potential clients who lack informal support, only if their impairments and needs were less demanding and less threatening to their well-being and safety outside the presence of a paid or informal caregiver. The Modified RUG- III ADL Index scores for those clients suggest otherwise, but the number of cases at the low end of the support scale are too few to permit a reliable inference.

Table 3: CAP/DA is Highly Selective in Accepting Clients with Little or No Informal Support. Source: N.C. CAP/DA Quality Assurance Samples for April-Sept. 1996 (n=510)

CAP/DA Assessor's Evaluation of Informal Support % of CAP- DA Clients Total Monthly Budgeted Medicaid Cost Mod. RUG- III ADL Index
Intact and could expand
16%
$2,028.18
7.6
Intact, but at limit
66%
$1,963.11
6.8
Stressed, meeting with difficulty
15%
$1,979.60
7.5
Inadequate
2%
$1,641.77
5.6
No informal support in place
1%
$1,544.00
7.8





Conclusions
CAP/DA case managers target higher levels of program services... for those clients who display higher levels of impairment.

The findings demonstrate the usefulness of analyzing the program's existing administrative datasets to learn more about the client population, and how that population is served.
The first study in this series found that North Carolina's CAP/DA program was on target in serving a client population of frail elderly adults and disabled adults with high levels of functional impairment. The current study has found that within the CAP/DA client population, case managers target higher levels of program services and tangible supplies for those clients who display higher levels of impairment as measured by activities of daily living and certification for an SNF level of care.

This conclusion holds true whether looking at ADL's impairments and level of care on their own, or when holding other variables constant including informal support and mental impairment.

These findings suggest that North Carolina's CAP/DA program is on track, and the findings demonstrate the usefulness of analyzing the program's existing administrative datasets to learn more about the client population, and how that population is served.

These findings also suggest useful avenues for future study of the CAP/DA program and North Carolina's long term care system in general. This study examined individual budgeted costs as an easily obtained proxy for actual spending at the individual client level. The understanding of program costs could be greatly refined by the direct examination of actual billed costs, and further refined by breaking those costs down by types of services provided.

Such a study would provide half the foundation for a meaningful system of outcome measures for CAP/DA. The remaining half would require a means of recording and comparing changes in client status over time along the dimensions of ADL and IADL impairment, number of hospitalizations, number of admissions to nursing homes, and client satisfaction. By combining costs with changes in client status, CAP/DA could measure the cost effectiveness of its services, or monitor differences in cost effectiveness between different county programs or service providers. For example, CAP/DA could measure the cost per ADL improvement (or new ADL impairment avoided), or cost per hospitalization avoided, across locations or across providers.

If CAP/DA programs entered annual client assessment data directly to computer rather than on paper, and if DMA linked these assessment files with client-specific database records of actual client costs, then outcomes-based quality measures and outcomes-based cost-effectiveness could be automatically measured, monitored, and reported.

Appendix A Comparison of Original and Modified Versions of the RUG-III ADL Index 10

ADL's
RUG-III ADL Scores
Modified Version
Toileting and Transferring
1 - Independent, or Supervision 1 - Independent, or Only Verbal Prompting Needed
  3 - Limited Assistance 3 - Minor Hands-on Help Needed
4 - Extensive Assistance or Total Dependence: One-Person Assist 4 - Totally Dependent or Activity Does Not Occur
5 - Extensive Assistance or Total Dependence: Two-Person Assist 4 - Totally Dependent or Activity Does Not Occur
Eating
1 - Independent, or Supervision 1 - Independent, or Only Verbal Prompting Needed
  2 - Limited Assistance 2 - Minor Hands-on Help Needed
3 - Extensive Assistance or Total Dependence: One-Person Assist 3 - Totally Dependent or Activity Does Not Occur

References

1. N.C. Div. of Medical Assistance, "CAP/DA Assessment" (survey form), (Raleigh, N.C.: July 1991), p.5.
2. Williams, Brent C., Fries, Brant E., et. al., "Activities of Daily Living and Costs in Nursing Homes," Health Care Financing Review, Vol. 15, No. 5, Summer, 1994, pp. 117-135.
3. N.C. Div. of Medical Assistance - Community Alternatives Programs Unit, Medicaid Community Alternatives Program for Disabled Adults (CAP/DA) Manual, (Raleigh, N.C.: October 1994), Ch. 10.
4. "CAP/DA Annual Reports Summary," N.C. Div. of Medical Assistance, (Raleigh, N.C.: Nov. 5, 1996).
5. Telephone interview with Judy Walton, CAP Manager, N.C. Div. of Medical Assistance, Feb. 7, 1997.
6. Williams and Fries, et.al., p. 126. (Note: The chart in Figure 2 is based on a similar chart by Williams and Fries.)
7. Rabiner, Donna, et.al., "The Effect of Channeling on Home Care Utilization and Satisfaction with Care," The Gerontologist, Vol. 35, No. 2, April 1995, pp. 186-195.
8. "CAP/DA Assessment" (survey form), p 7.
9. Ibid., p. 11.
10. Williams and Fries, et.al., p. 128.


Acknowledgements
Once again, I thank the N.C. Division of Medical Assistance and Medical Review of North Carolina (MRNC) for their kind assistance in providing and me to understand the data that this study is based upon. Bruce Steele and Judy Walton of the CAP/DA Program and Annette Fulcher of MRNC spent a generous amount of time answering my questions and offering advice.

I also wish to thank Jennifer Hoffmann, Sandra Crawford Leak, and Dr. George L. Maddox of Duke LTC for their comments, suggestions, and reviews of this work. Prof. Elise Bolda of the Muskie Institute of Public Affairs at the University of Southern Maine was particularly helpful in recommending articles to read and suggesting several important improvements in the analysis and presentation of the data.

However, the sole responsibility for any and all errors is my own.

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